Friday, June 5, 2009

The waiting might kill me. Monday we will celebrate Addie's ninth Birthday, and then we leave to meet Nevaeh. We will get to meet her at 11 AM on Tuesday. I spent the day today doing TONS of paperwork, had to fill out about 15 different forms to transfer all of Nevaehs' medical records from her current specialist and GP to her new specialist and GP. I spend quite a while on the phone arrangeing appts for her with all the new specialists come August, and was able to scheduele them for hte same three days as Annie and Carlos' typcial Mayo Appts, which means less time away from home. On the other hand, it does mean a three day stay at Ronald McDonald House. It's a wonderful amazing place, we just prefer to be home. It's not really that far (about an hour and a half) but that's three hours a day in the car three days in a row. A lot for any child. Too much for three children with nuero issues.

Still trying to get a copy of her ECSE IEP (there should be a prize for the reader who knows what that means!) LOL! Other than that, we have most everything done. Have a nursing agency and will be interviewing nurses on Thursday. I just want to have everything in place when she comes home so that there are no gaps in care as well as being able to just focus on the whole family adjusting and bonding.

Jeff is out with reserves tonite, I think the kids and I are going to go to bed early tonite, mom is exhausted and the kids seem a bit overwhelmed from the excitement of the last day of school. I think I finally found a home for all the "treasures" they bring home on the last day. You know what I mean, popsicle stick figurines, dried up bottles of glue, name tags, you name it. Now multiply times four. (the older kids are homeschooled) Anyway, it felt like a mountain I needed to conquer. I always forget about all that until they walk int he door on the last day. It must be a defense mechanism. :0)

Blessings to you all~ I will try to stay busy this weekend to make the time go faster.

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